what is CSID?

There are multiple dietary deficiencies that can lead to a food intolerance. A lactose intolerance, for example, comes from a lack of the enzyme lactase, which breaks down the lactose found in milk and other dairy products. A fructose intolerance (also called fructose malabsorption) comes from a lack of the transport protein GLUT-5.

CSID is a rare, unpleasant intolerance that relates to a similar lack of digestive enzymes in relation to certain sugars and other carbohydrates.

what is CSID?

Those who struggle to absorb the carbohydrates starch and sucrose suffer from a deficiency known as SID, which stands for sucrase-isomaltase deficiency. This refers to the lack of the enzyme sucrase-isomaltase, which helps break down those two key carbohydrates (which we ingest in large volumes in most human diets).

It’s possible to suffer from SID for different reasons. However, a starch and sucrose intolerance often comes from an inherited form of SID called congenital sucrase-isomaltase deficiency or “CSID.”

The organization CSID Disease Information formally defines CSID as “a rare genetic disorder affecting the digestive function of sucrase and isomaltase enzymes in the small intestine.”

who can get CSID?

CSID is rare in certain areas of the world, such as Europe. However, in North America, it’s much more common. Native groups, including Canadian natives and Greenland Eskimos, are particularly susceptible to the disorder.

In that last group, it affects as much as one in every 10 people. In comparison, as few as one in 2,000 of those with European ancestry tend to inherit CSID, although some studies indicate this number could be higher and more research is needed.

The condition affects both genders. It can manifest in infants and is more severe in younger children. However, as a person ages, their symptoms tend to become more manageable (though they can still be very painful). Typically, the severity of symptoms reflects how few (if any) sucrase-isomaltase enzymes their bodies are producing on their own.

what are some of the symptoms of CSID?

CSID symptoms can include:

• Stomach and intestinal cramping
• Abdominal pain
• Bloating and excessive gas
• Chronic diarrhea
• Obstipation (chronic constipation)

While these are similar to many other intolerances, if they are present in young children or infants, that can be a sign that it is CSID. If you are suspicious that this could be the case, it is wise to seek professional advice as early as you can.

enjoying your food again when living with CSID

Living with CSID has its challenges, but it’s certainly possible to manage your symptoms and still enjoy your food. From altering your diet to using enzyme supplements, you can help your body break down troublesome foods in a healthy, pain-free way that keeps you satisfied and smiling every day.